Apologies to The Beatles living and dead for my corny headline! Tapering has been on my mind this week. I have been doing a slow taper down of Prednisone. After a few good weeks I am starting to feel a bit weaker again, particularly in my legs. My energy level has been good but I […]
Myositis Colorado turns 2! This blog was started in honor of National Myositis Awareness Day (2012) to share what we know about myositis, and share learning about what we don’t know about myositis. Thanks for coming along – we appreciate those who’ve read, commented, shared, and supported our blog!!!
My status update As most dermatomyositis and polymyositis patients can attest to, recovery from the onset of the disease or from a flare-up can be a frustrating process. Some weeks you feel improvement and others you feel you are slipping back. After a few weeks of not sensing any improvement, I have felt more energetic the […]
Ongoing trials for DM/PM patients I have only participated in one clinical trial in my life. It was for a hypertension drug back in the early 1990’s. I have not participated in one for dermatomyositis. However, I have used medications when they were still considered novel treatments, such as Rituxan in 2007 and Acthar this […]
We learned that prolonged use of steroids reduces bone density – not good news considering that the first (and sometimes only) course of treatment for DM & PM is usually high-dosage prednisone then a maintenance course of steroids. While discussing this with fellow DM patient Laura Clark-Moore (check out her myositis blog Laura’s Mind Escape […]
Wow! Do we ever have a LOT of information to share with you from the 2014 TMA Conference! While we sort it out and get the posts ready, here’s a quick idea we came up with while walking through the airport yesterday. Exercise is important to everyone’s health, and is particularly important for myositis patients! […]