After six weeks on Acthar with no improvement, I started Rituxan this week. We have not given up all hope on Acthar. I will complete the 12 week course. We hope that in conjunction with Rituxan I can kick this flare-up into suppression. I was given Rituxan in 2007 when I had my initial attack […]
Rituxan has been around for a while. It can be called Rituxan (brand name) or rituximab (generic name). Rituxan’s main indication is for Non-Hodgkin’s Lymphoma. You can find out more about the drug, including side-effects, by clicking here, although there is no information on its use for myositis on this website. Rituximab targets a protein […]
I am getting slower in my blog entries for which I must apologize. As you may know I have been on Acthar for a while for my Dermatomyositis flare-up but have not seen any positive effects so far. The Acthar injections are getting more painful. I don’t know why but I am wondering if the […]
Not to bury the lead – today’s my birthday. I’m 39 years old. This week has been interesting for me. In addition to the usual daily fodder Mo had to go in to the doctor to have retinal tears repaired. Mo is terribly near-sighted. He’s had glasses since he was a year or so above […]
Congratulations to Shelly DeLaCruz for winning our 2014 t-shirt design contest! Her design will be featured on t-shirts & totes for our group members attending the TMA Conference in Reno and our 2014 Picnic in the Park! We’ll let you know as soon as items are available for purchase. Way to go, Shelly!!!
Thanks to everyone who attended our May 3rd meeting! The room was full (we promise to try and get Swedish to give us a bigger meeting space for our June & August meetings) and it was great to see so many interested in hydrotherapy! Thanks to Diana & Rick, ClaudDeen, Tom, Bob & Betty, Cathy, […]