Our first YouTube video ever! Hooray!!! Watch Mo go through the steps of his Acthar injection. Rated E for everyone.
Hey All! We received this email not too long ago: Dear Myositis Colorado, I would like to share with you the link to the We Connect Now website. http://weconnectnow.wordpress.com/ The website was created while a college student with a grant to create a website to serve college students with disabilities. I developed the website to […]
I have completed 3 weeks of my Acthar treatment for DM. 6 injections done, 19 to go! Thanks to NORD, click here, my next two vials of Acthar arrived last week. This will keep the treatments going for another five weeks. I wish Fed-Ex would give a smaller window than 8 hours for delivery, the […]
April 29, 2014 Exercise to reduce inflammation, increase strength and flexibility Live Discussion Helene Alexanderson, PhD, RPT, will answer your questions about exercise on Tuesday, April 29, at 2pm ET. (NOON for us in Mountain time zone) Dr. Alexanderson, a member of TMA’s medical advisory board, is with the Dept of Neurobiology in the Division […]
Our next Colorado KIT Group is coming up soon! Saturday May 3rd 10AM-NOON Swedish Medical Center, Room PINE A (501 E Hampden Ave. Englewood, CO 80113) Our group ambassador, John Mozer, has booked an exciting speaker for our meeting – Thanks, John! Our speaker for the May 3, 2014 meeting is Barbara Douglas […]
Another Arts for Kids video – I’m kinda obsessed with this series. Enjoy!
All three of us are home on Fridays – Conor doesn’t have preschool, Mo doesn’t have work, and I don’t have anything I can’t do tomorrow. So it’s a great day for us to do family stuff. A nice kickstart to our weekend, a bonus day! There are a lot of things we’d like to […]
Today I welcomed back an old friend that I have squirreled away in my garage for the past seven years. Over time I have gotten rid of most of my medical assistance devices such as my wheelchair, raised toilet, and lift-chair. I am never going to get rid of my beloved quad-cane. When I was first […]