Happy Rare Disease Day, Myositis Family! February 29th (the rarest day of them all) is officially Rare Disease Day, and this year February 28th is our time to let the world know “We Are Here”! Join NORD’s mission for advocacy, education, and support. Learn how you can get involved! The National Organization for Rare Disorders […]
Charlia got me thinking about spring gardening, click here. Darn you, Charlia! 😉 I’ve lived in Colorado for 33 years (or as Mo would say “tirty-tree”) and have learned the hard way: NEVER PLANT OUTDOORS UNTIL MEMORIAL DAY! Don’t let our 300+ days of sunshine fool you, it can get downright nippy in May and […]
It’s almost seven years since Mo’s DM diagnosis and we are now facing our first official flare. Seven years bad luck. When Mo went into the hospital for testing in March 2007 his CPK was over 17,000 (the normal is 50-100). He’s never been back in the “normal range” but his CPK hovered around 300. […]
Do your loved ones know who to contact for support? Myositis Colorado first and foremost is a support group. We’re here to help in any big or small way possible for ANYONE struggling with myositis. That means patients, caregivers, family, friends, anyone! But we can’t help if we don’t know you need help. So in […]
Does Myositis Colorado have any Green Thumbs? TMA is looking for gardeners who have adapted their skills or equipment to accomodate their myositis life. Here’s what it says on the TMA Facebook page: Any more gardeners out there who have found ways to get around your disease? Would especially like some print-quality photos to go […]
I’m getting ready to make some valentines for my two sweeties. Here’s a super cute craft for any of your heartthrobs, Happy Valentine’s Day on friday!