a brief history of

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Hawking aired on PBS last night – it was a fascinating look into the life of Stephen Hawking, told for the first time BY Stephen Hawking. Click this link to watch: http://video.pbs.org/video/2365154805/

Mo and I were both really looking forward to it, afterall Hawking is nothing less than remarkable.

The show focused largely on what it is like to have ALS, and how it affected Hawking’s way of working and thinking about the universe. I had heard a Ted Talk with Hawking, click here, where he speaks about his disability allowing him the opportunity to be in his mind more than his body. What a great thing. To realize and accept that “tomorrow is not promised” and live your life importantly.

After the show Mo and I were talking about what we saw – Jane Hawking (his first wife) spoke candidly about the stress of living a public life while their private life was crumbling. As his first and primary caregiver I could sympathize with her struggles – especially raising two children while dealing with the disease. Hawking didn’t talk much about his kids, and they weren’t interviewed for the show either. I wonder what they thought about the disease and their dad.

It got me thinking “when do we tell Conor about Mo’s disease?”

So far – knock on wood – it hasn’t been an issue. Mo hasn’t been “sick”. We’ve talked to Conor about Mommy’s limitations, he knows all about my “hurt foot” and understands when I can’t walk far or run after him. But Daddy’s disease isn’t on the outside. It isn’t visible to his four-year-old eyes.

We’re going to talk about it as a family… sometime – any suggestions?

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One thought on “a brief history of

  1. When to talk to Conor about Mo’s disease….you said it in your next to the last sentence….”it isn’t visible to his four year old eyes”.

    He can see your foot and is better able to understand your limitations because it is more tangible to him. I would wait until he is a couple years older so he will better understand what you are telling him. Love, Mom

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