We are so lucky to be living in the age of the internet. With a disease as rare and publicly unknown as myositis, what other way would we have to connect with medical information, treatment options, and each other? What other way indeed…
TMA needs our help to get the word out about our disease and the support available to those newly diagnosed or even those yet undiagnosed. Imagine someone suffering from myositis reading a newspaper/magazine article, hearing a radio interview, or seeing a segment on t.v. where they hear the word “myositis” for the first time. They hear your story, and they hear their own at the same time. They say to themselves “That happened to me!” or “I feel like that!” What a blessing you could be to that person, or the person who knows that person, or the person who knows that person who knows that person. You could cause that ripple effect that helps someone get the treatment and help they need!!!
One of the best times to approach the media is around National Myositis Awareness Day (NMAD) which is September 21st. For TMA’s advocacy and the story of the beginning of NMAD, click here.
In the next three months there is plenty of time to get the word out about myositis! To make sure Myositis Colorado and our Colorado KIT Group is doing our part, we are starting a media outreach through SignUpGenius – follow this link to help us promote NMAD within Colorado!
If you are not IN Colorado, but you follow this blog… please reach out to your local media, wherever you are.
“I alone cannot change the world, but I can cast a stone across the waters to create many ripples.” – Mother Teresa