Happy First Day of Summer! Since Mo has DM, skin care and sun protection are topics near and dear to us. Click here for more info on DM. DM can cause photosensitivity (adverse reactions to sun exposure). Added bonus: the medications used to treat DM can cause photosensitivity too. What the #*@$!!! Click here for […]
If you haven’t participated in the TMA live discussions, you are missing out on some great information! June’s live discussion was about the Follistatin Gene Therapy Trial, click here. July’s live discussion will be “Myositis Skin Care and Treatment” with Dr. Victoria Werth, current president of the North American Rheumatologic Dermatology Society, co-founder of the […]
Click here for the link to the live discussion last week on Follistatin Gene Therapy trial. IBM patients – this trial is still open, if interested in participating email below. Drs. Mendell and Kasper: Thank you very much and we hope our answers have been helpful. If there are patients interested in participating please email: […]
Something pretty for your Monday!
Click here for more information about Surehands Lift & Care Systems.
Ugh. Stairs.The enemy of myositis patients everywhere. But don’t despair! There are a lot of options for dealing with this menace. Let’s start with chair lifts. There are tons of styles, configurations, and price points for chair lifts on the internet. You can even find them on Craigslist and in the classifieds. Warning! Warning! Danger, […]