rare disease day

Today is Rare Disease Day!

NORD (National Organization for Rare Disorders) is a fantastic organization that supports all affected by rare disease.

Click here to visit their page.

Screen Shot 2013-02-28 at 12.06.38 PMYou can join NORD in their advocacy efforts by contacting our highest national officials, President Obama and the U.S. Senate & House of Representatives, with this pre-formatted email to tell them the importance of continued support and funding legislation! Click here for the simple email form for their Handprints on the Hill campaign!!!

Screen Shot 2013-02-28 at 12.13.05 PMLetter NORD received from President Obama for Rare Disease Day

To follow NORD on Facebook click here, to follow NORD on Twitter click here.

 

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3 thoughts on “rare disease day

  1. Hi Mo and Nicole. I was unaware that today was Rare Disease Day and had never heard of the organization NORD. I did go to the NORD website and joined in by sending messages to the President and my Congresspersons and also sent e-mail to several family members and friends to do the same. Thanks for bringing this to my attention. John

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