Today is Rare Disease Day!
NORD (National Organization for Rare Disorders) is a fantastic organization that supports all affected by rare disease.
Click here to visit their page.
You can join NORD in their advocacy efforts by contacting our highest national officials, President Obama and the U.S. Senate & House of Representatives, with this pre-formatted email to tell them the importance of continued support and funding legislation! Click here for the simple email form for their Handprints on the Hill campaign!!!