Today is Rare Disease Day! NORD (National Organization for Rare Disorders) is a fantastic organization that supports all affected by rare disease. Click here to visit their page. You can join NORD in their advocacy efforts by contacting our highest national officials, President Obama and the U.S. Senate & House of Representatives, with this pre-formatted […]
So as most of you know, we FINALLY made our bucket-list lunch at The French Laundry last week! As luck would have it, when we secured our 2-month-advance-reservations in December, our lunch was booked the Friday of Valentine’s Day weekend. Even more fortunate for us, the weather in Napa was sublime and Spring-like. Quelle romantique! […]
Mo has me on the lookout for a great deal on multivitamins, especially with concern to Vitamin D. What are your thoughts about Vitamin D? Has anyone tried the copious amounts of D3 some health gurus suggest?
There will be a live discussion on TMA’s website: Access to Treatment – Michelle Greer Tuesday February 26th 1PM EST (11 AM Mountain). Join this live discussion as Michelle Greer answers questions about reimbursement and coverage issues with public and private insurers and the treatment you need for your disease. Michelle Greer is the vice […]
We received this invitation in our email, and thought we should pass it along to our readers! This is a teleforum for I.G.Living Magazine (click here for our past post of this). If you are interested, here are the details: “You are invited to the IG Living’s next reader group conference call, a teleforum through […]
So I was just looking for some exercises and equipment our group members might be interested in, and came across this video for the “Kefty”. Have you seen this yet? It looks a little like something you could make yourself at Home Depot with some cleverly placed bungee and pvc pipe. For more information about […]
Thanks to everyone who made it to our first meeting of 2013! At the meeting we screened the Fall Prevention Video produced by TMA, and showed how to navigate this blog and the Myositis Colorado Facebook page. We also gave out recruitment packets for our members to drop off at their doctor’s offices so more […]