rare disease day

Today is Rare Disease Day! NORD (National Organization for Rare Disorders) is a fantastic organization that supports all affected by rare disease. Click here to visit their page. You can join NORD in their advocacy efforts by contacting our highest national officials, President Obama and the U.S. Senate & House of Representatives, with this pre-formatted […]

TMA live discussion

There will be a live discussion on TMA’s website: Access to Treatment – Michelle Greer Tuesday February 26th 1PM EST (11 AM Mountain). Join this live discussion as Michelle Greer answers questions about reimbursement and coverage issues with public and private insurers and the treatment you need for your disease. Michelle Greer is the vice […]

IG Living Readers Teleforum – February 20th Invitation

We received this invitation in our email, and thought we should pass it along to our readers! This is a teleforum for I.G.Living Magazine (click here for our past post of this). If you are interested, here are the details: “You are invited to the IG Living’s next reader group conference call, a teleforum through […]

February meeting recap

Thanks to everyone who made it to our first meeting of 2013! At the meeting we screened the Fall Prevention Video produced by TMA, and showed how to navigate this blog and the Myositis Colorado Facebook page. We also gave out recruitment packets for our members to drop off at their doctor’s offices so more […]